Rare Disease Treatment Support | Genetic Tests and Specialist Care Covered

You can give to Quenara Foundation here or through the Quenara app. The gift covers a genetic test or a specialist visit or a therapy session for one patient.

Quenara Foundation helps children across the US through its own field team and in the Philippines with local partners. Therapy and specialist care are the most common costs.

The FDA estimates over 10,000 rare diseases. Together they affect upward of 30 million people in the United States.

Under the Orphan Drug Act a condition is rare when it affects fewer than 200,000 people in the United States.

According to the FDA most rare diseases do not have an FDA approved treatment. That makes therapy and regular specialist checks even more important.

It can. When a doctor orders a genetic test and the cost is holding it up our team pays the laboratory directly.

The therapy center or the hospital or the lab that treats the patient. Payment goes to them on the doctor's order.

We meet costs for children and adults with conditions such as spinal muscular atrophy and Duchenne muscular dystrophy and cystic fibrosis.

Rare Disease Day falls on the last day of February each year. In 2027 it is February 28.

The treating hospital or clinic brings the case to our team. We confirm the bill with the provider and give priority to children.

Your account names the city and the type of care within 72 hours. Details about the patient's condition are not included.

In the Philippines our team works with local partner organizations to pay for therapy and specialist visits at hospitals.

You can pick monthly at checkout. Families in ongoing therapy benefit most from steady support.